Last Thursday was our official post opp visit with Dr. Demmer. We walked in with a list of questions for him to answer and this is what we got...Connor's eyes are not crossing :D, he CAN see and does use his right eye :D, his irregular shaped and not centered pupils are not related to any of his eye problems - it can just happen, Connor has a slight stigmatism, his egg shaped eye creates the optic nerve to attach in a different spot which can cause different readings of his prescription - so it is possible that his prescription has never been read correctly, even now. Dr. Demmer says we will never know until he can tell us, which is about 10-12 years of age. Because Dr. Demmer has never seen such a high myopia (nearsightedness) in a 2 year old we are beginning Genetic testing on July 20th. I know many have asked if this is preventable and is there corrective surgery...at this point the answer is a big don't know. Until there is a proper diagnosis of Connor's eyes we will not know. The next few years Connor is going to be watched closer and we will hopefully find out more each visit to Jule's Stein.
We also saw the contact specialist to pick up Connor's contacts. It was the big day as Connor got to go walking without his glasses, just his new, first pair, of contacts. Once we got both contacts in Connor walked around the building, licking his lollipop, smiling and told daddy "that's not so bad". It was so cute...I think there was a few of us with tears. :) His eyes are beautiful, he has the most gorgeous long eye lashes and now cool eyes. His right eye is green and blue eye is bluer (because it is a blue contact). They have colored contacts so it makes it easier to remember which eye they go into, easier to find if you loose it and easier to actually see it on the eye...I was not excited about this at first, but now I am so thankful for this technology as it makes OUR life a bit easier.
Now that we are home, not much has changed. It is a horrible process putting them in and taking them out...something no parent wants to go through. However we have been told that it is the best thing for Connor, so Mike and I are sticking together and supporting each other as we both are having an extremely hard time. Connor screams, cries, kicks, asks us "please stop mommy/daddy", and sweats until it looks like he has jumped into a swimming pool with his clothes on. It is rough, but once he has them in he claps and and says "good job connor", we shower him in hugs, kisses, as many otter pops as he wants and a new matchbox truck! Then he gets to do whatever he wants (usually a request to walk the alley ways :D). We are hoping it will get easier. The first day we lost a contact and found it three hours later, it came back to life thank god!
Thanks again for all the love, support, donations and continuous prayer for Connor. I know there is so many of us wanting answers and to hear his eyes are not going to keep getting worse. As the mom of Connor I have just had to lift everything off my chest and know each step is a step in the right direction and we are working each day to make the best life possible for him. God KNOWS the purpose to all of this and HOPEfully one day it will be revealed to us.
Wednesday, June 9, 2010
Thursday, June 3, 2010
:: Hope ::
My Dear Child,
Do you know what hope is?
It's magic and it's free.
It's not a prescription.
It's not in an IV.
It punctuates our laughter.
It sparkles in our tears.
It simmers under sorrows.
It dissipates our fears.
Do you know what hope is?
It's reaching past today.
It's dreaming of tomorrow.
It's trying a new way.
It's pushing past impossible.
It's pounding down the door.
It's questioning the answer.
It's always seeking more.
It' rumours of a break.
It's whispers of a cure.
A roller coaster ride.
Of remedies, unsure.
Do you know what hope is?
It's candy dor the soul.
It's perfume for the spirit.
To share it makes you whole.
Take my hand, little one,
Let's share this hope together!
Love,
GiGi Jean
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