Hi Friends...
A little update on our Connor man :D
Contacts are getting a bit easier - thankfully! Since Connor's eye is not shaped like a normal eye, they are having a hard time fitting the contacts. We have now lost two of them :( We will be seeing our contact lens specialist next Friday for a new pair, hoping these ones will fit perfectly! They say third time is a charm! Dr. Lee will be leaving us, so we will be getting a new contact lens specialist to work with. Please pray we will be able to establish a good relationship with this doctor, as these appointments are very rough for Connor. Dr. Lee has become a friend to him and has finally built trust with her and enjoys seeing her. We will miss her a lot!
On Tuesday, July 20th we met with Dr. Bird, a genetics specialist. Dr. Demmer requested for Connor to get genetic testing done for Stickler's Syndrome. It took two months to get an appointment, but we are thankful we are at Rady's Children in San Diego and do not have to go to UCLA. Dr. Bird was wonderful, she loved Connor and he instantly loved her when he got 8 Thomas the Train Stickers. She did a complete physical on Connor and ask for history of him as well as each of our families. Dr. Bird was very thankful to see Dr. Demmer requesting to put Connor through testing now at such a young age. Dr. Bird said we could begin testing now, but each test can cost $2000 - $5000. We decided we would wait for authorization from our insurance for these tests which will take about 30 days. We will start testing hopefully beginning of September. Connor's genetic testing will just include blood work. We are not sure how long it will take to get results from testing, as it can lead to Mike, Taylor and myself all being tested. We will update you as soon as we find out when his testing will begin.
Thank you again for all your uplifting letters, support and love for our family and sweet boy. We are truly grateful for each one of you!
Love,
Mike and Ashley
