Yesterday was our first appointment at UCLA with Dr. Joseph Demer. It was an exhausting 4 hours in his office, however, for the majority of the appointment Connor did very well, with just a few tantrums and cries. According to Dr. Demer, Connor's eyes are very straight, so we know his Strabisimus surgery was successful. It was also confirmed that Connor's eye sight has gotten much worse. He was given a new prescription of -17.5 in his right eye and -19 in his left eye. This concerns us a bit, as this change is not normal. There are many reasons why his eye could be developing this way. Currently we have been left in the dark, as Dr. Demer does not want was to worry over possibilities. He wants to make a diagnosis and then educate us. He mentioned it could be due to a disease in his lens, the actual shape of his eye, or the eye developing too quickly. In order to find out what could be going on, Connor will go under Anesthesia at the end of April (there is not a set date yet) to look at his complete eye anatomy. Another doctor will also attend who works with children in contacts. Dr. Demer thinks it would be a smart move to switch Connor into contacts because of his strong prescription.
We thank everyone for your phone calls, prayers, texts, emails and donations. It has meant SO much to us to know there is so many people who love our little boy as much as we do and receiving so much support helps to confirm we are making the right decisions in finding out Connor's proper diagnosis. We love you all and will keep you posted with the dates they set for his next appointment.
~ Ashley and Mike
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